Daughter Knows Best

By Dawn Thompson

 To bring up; nurture: bear and foster offspring.

To promote the growth and development of; cultivate: detect and foster artistic talent.

To nurse; cherish: foster a secret hope.

I was first a foster parent when I was 20 years old. I barely had a child of my own and was blessed to be able to care for another child just about the same age. Although it was unforseen and unexpected, I knew it was part of the plan. Not my plan, the BIG plan.

Years later that child went on to be adopted and my little one was on her own again.

About five years had passed and I was not in a position to have more children by birth. Besides, I wanted someone old enough for my daughter to relate to, so I looked into foster care. I was SURPRISED to see how many children were in desperate need of a home.

There were over 3,500 children in MA alone that needed placement, but how could I find the right one for our family?

I started doing research and realized that older children were harder to place. Out of those older children, there were different groups that made it even more difficult to find homes.

After months of learning everything I could about the children waiting for care, I decided I wanted to take a child that might not otherwise have a shot. I took a risk. A BIG risk on a child who was pretty much deemed unplaceable.

This kid had been through many foster homes, and at the young age of eight was already losing her chance to be part of a family due to a lack of empathy and psychotic behavior.

I met with family services again and again. I thought that if anyone could give this kid a chance it would be us. We went over a six month plan that included intensive therapy, slow integration and, most importantly, a plan to keep everyone safe during crisis interventions.

Special classes and training were provided, I bought all kinds of books to address her special needs and even took college courses to help. I was ready for my beautiful little girl to come home.

I’ll never forget the first time I met her. She called me “MOM.” I was a bit taken back until I realized this kid took everything literally, and did not even understand jokes. She had many disorders that made it difficult for her to succeed, but she tried and tried her best!

After two years of trying everything under the sun, our team decided it was time to make other plans outside of adoption.

The child was now 10 and a half, bigger and stronger, yet still showing no signs of empathy or reasoning. This was somewhat manageable as long as she didn’t have to socialize with anyone else and as long as she was content. As soon as other people were brought into her life; school, neighbors, strangers at the grocery store, she would regress and her safety and the safety of others became seriously compromised.

The last six months she stayed with us were spent getting her a permanent placement in the best facility to suit her needs. This was not an easy task and required multiple days in court advocating for her, lots of research and many, many visits to slowly move her over but we did it!

I often questioned my decision on taking in such a special needs child, as it was extremely difficult on my family and friends but ESPECIALLY my daughter. She was only nine at the time and never saw or knew such things before. We had been through a lot together, including fostering another child who was easy and gentle, but never imagined such difficulties and stress during everyday life.

I felt bad about that for many years, yet felt good for the difference we made for another child. Three short years of hard work for us meant a lifetime of quality care for another, but who was I to make that sacrifice for my child? As parents we don’t alway’s make the “best” choices for our children, but who’s to say difficult experiences are the worst? Sometimes these challenges bring out strength and abilities in our kids that they might not otherwise know they had.

Two years ago my daughter graduated with a degree in psychology from Worcester State University. She held a job as an intern for the Robert F. Kennedy Children’s Action Corps, a residential treatment center for kids in crisis. Some with needs similar to the ones her ”sister” had, yet most not as severe. I used to hope she’d forget most of what she went through back then, but now I hope she NEVER does, as it will be her strength and guide. She is going for her Masters now and works for Mass Mentors. I can’t even begin to tell you how I DO believe EVERYTHING happens for a reason.

I have learned that when things seem different from what we expect, that doesn’t mean it’s not supposed to be, it just means it may be part of the BIGGER plan.

As for the foster child, she is now 23 and still thriving in her placement. My views of the perfect placement have drastically changed since I first started out. I used to think the perfect family consisted of parents and children. That has grown to include ANY group of individuals who can reside safely and peacefully under one roof without compromising the safety or happiness of each other.

For some that might be in a private home for others in a residential setting. There are so many children in Massachusetts alone who need foster care, specialized care and mentors. There are so many ways to give and to help these kids get what they need.

You do not have to have an extra room in your house, just a little extra room in your heart.

Call Mass Mentors TODAY at 617.695.1200 to see how you can make a difference in the life of a child or visit them online. You will be surprised how MUCH of an impact you can make. Not only on the life of a child, but on society as a whole.

Summer Fun on a Budget

By Julie Patno, Manager, Center for Community Health and Wellness, Lowell General Hospital

Summer vacation is exciting, but has the summer boredom sunk in among your kids? Keeping kids busy all summer can be overwhelming and the costs can add up fast.

But don’t worry, it doesn’t have to be that way!

The Center for Community Health & Wellness at Lowell General Hospital put together a packet full of inexpensive ideas for you and your family to do, and plenty of programs offered in the Greater Lowell area with links for more information. You will also find information on special offers and even free admissions to local museums, parks, and even movie theaters.

Looking for some inexpensive ideas to keep your kids busy during their time off? Here is a preview of some of the programs, tips and ideas you will find in the complete LGH Summer Fun on Budget Packet

 Create your own Summer Budget Kit!

  • Large plastic bin or box hold all of the supplies
  • Craft supplies such as glue, contraction paper, watercolors, finger paints and scissors
  • Coloring books and crayons
  • Sidewalk chalk
  • Water balloons
  • Bubbles (liquid and wands)
  • Supplies to make a fort such as old sheets and pillows or card board boxes
  • Gardening supplies such as plastic pots, plastic shovels and free seeds from kitchen (dried beans, apple seeds, avocado pits)
  • Jump ropes
  • Hula hoops

Bookworm Wednesdays!   

Every Wednesday at 10:00am starting July 6th for six weeks

  • Bookworm Wednesday entitles kids to free admission to a select children’s film were they present a book report at a participating Showcase Cinemas, Multiplex Cinemas, or Cinema de Lux box office
  • Parents/Guardians and children under 6 years old do not need to submit a book report
  • This is a fun and rewarding summer reading program that was developed to encourage young children to read during the summer months

Remember keeping your kids happy and busy doesn’t have to be expensive. Want access to more Summer Fun on a Budget ideas, programs, camps and special offers in the Greater Lowell area?

Check out this link.  We’d love to hear your ideas too!

 

Weight Management Program for Teens

The Center for Youth Wellness is a teen weight management program that is coming to Greater Lowell, courtesy of the Floating Hospital for Children at Tufts Medical Center, in partnership with Lowell General Hospital and the Greater Lowell Family YMCA!

You’re invited to a free information session on Thursday, August 2, 2012 from 6:00-7:00pm at Lowell General Hospital Chelmsford, 20 Research Place, North Chelmsford, MA.

It’s not always easy in today’s world to practice healthy eating and physical activity habits. That’s why the Center for Youth Wellness offers fun and interactive wellness programs to support teens in becoming balanced, active and mindful young people. In a group setting, 11-18 year-olds learn how a balanced lifestyle can lead to improved health, weight, and self-confidence.

Click here to learn more about the program.

Here is what participants have to say:

“This program was a great success. I was able to learn something that actually worked. I noticed that I was losing pounds. I was able to meet people with the same problem as me and we were able to help one another out. I’m glad I joined the program. I truly recommend it.”

“I made amazing friends and had great discussions. Through this program, I learned how to lead a  healthy lifestyle, and that I am not in it alone.”

A Weekend Away

By Amy Dienta

Recently my husband and I got to go away for the weekend with out the kids; the first time since Omar was born. Thank you to my parents who babysat our two boys.

I had dreams of sitting on the beach in Maine and sipping cold drinks. But it poured the weekend we got to go away. I’m not a big fan of driving hours in the pouring rain and I had seen a brochure for this quaint boutique hotel in Rowley, MA. So we headed to the Country Gardens Inn and Spa in Rowley, 45 minutes from Lowell, off 495.

We stayed in one of the Country Collection Suites.  The suite was beautiful with cathedral ceilings, a hot tub and gas fireplace in our room. This was perfect for a cold, damp rainy day. You could even watch the tv from the comfort of the hot tub.

To complete our vacation we rented some Redbox movies we watched in the room. Then got all dressed up and went to Royal Orchid Thai for dinner. They have really good vegetarian dishes!

After checking out, we went to Village Pancake House and got the most amazing omelets and hash browns.We then headed home to our boys.

Refreshed and ready to be parents again!

Beginning of the End

By Sandy Egan

Before I  jump into the third part of my “Art of Discipline” series, I must digress slightly to shed some light upon my most strongly held opinion about children and discipline. Once a child reaches puberty, the teenager views adults very differently than they did as children. The teenager will never view the parent as the omnipotent being they once did, and they will begin to see you as the imperfect being that you undoubtedly are. This is why it is so important to establish parental authority when the child is young. Teenagers walk a fine line between childhood and adulthood, and even though they may fight it, they need to know that someone close to them has a better handle on life than they do. If you’ve done a good job establishing authority with your teenager as a child, maintaining that authority will be easier when the teenager rebels against it.

They will rebel against authority, I guarantee it. How they do it depends on the individual child and what rules you’ve set up in the house, but be prepared. It’s inevitable, and crucial that the teenager goes through this stage. The only thing worse than a rebellious teenager is a rebellious adult who won’t move out of your home.

I wanted to share some funny stories about my daughter, because I believe that she got most of her rebellious expression out fairly young. It will also shed some light onto why I feel as though the establishment of authority is so important. I promised my daughter I would let her read the stories before I posted them, so I will leave you at this point to look forward to my next group of postings. Some may make you laugh, some may make you cry, and some may just dumfound you. I felt all of these emotions when the stories actually occurred. You have been prepared!

Disability

By Sue Anganes

Not only have the past few months been ultra busy, they have also been ultra stressful. Between multiple doctors’ evaluations, medical procedures and day-to-day life, I have barely had time to catch my breath. Having a child with a chronic, debilitating illness often leaves me exhausted, and somewhere between depression and grief. As a mom, my natural instinct is to try to fix everything that is wrong, but for the past nine years, not only can I not fix the problem, the problem is getting worse.

My thirteen year old son, Ray, has an undiagnosed neuromuscular disease. Every physical task is hard for him; from brushing his teeth, or sitting up in a chair, to walking. For some unknown reason he is losing all his Type I muscle.  At this point, his body consists of 80-90% Type II muscle. Most people have approximately 50% Type I muscle and 50% Type II muscle. The Type I muscle that Ray is lacking is the muscle that holds his body upright and allows him to stand. Both sitting up and standing are getting progressively harder for Ray to do. He also has chronic pain because the Type II muscle that he does have, is always straining to do the job that the missing muscle should be doing. Ray uses a wheelchair when he is outside our home and also has an electric scooter that his dad designed and fabricated for him to get around outside (dirt trails and grass) where a manual wheelchair can’t take him. For the most part, Ray is very accepting of his limitations and deals with life as it comes. Doctors have told me he has a very good attitude considering what he deals with, and I agree.

Since this is a mom’s blog, I thought I’d discuss the struggles that I have, as well as many of you may have, when dealing with a chronically ill or disabled child, and tell you some of the things that I do to help me cope with the stress. Disabilities come in many forms: physical, emotional, mental, behavioral and, no matter what the issue is, the toll it takes on you as the mom is tremendous. There are endless appointments for doctors, therapists, educational specialists; not to mention the extra effort it sometimes takes just to get out of the house with special equipment. There are medications to remember, tears shed over the loss of abilities and future dreams, occasional aggravation from those who give us unsolicited advice, and isolation that comes when others just don’t understand the hardship  because they haven’t walked in our shoes. These are things that cannot be changed, and somehow have to be embraced as the norm of life. There are, however, some very practical things we as moms can do for ourselves to help us cope.

One of the most important things that I feel has helped me is to get plugged into a network of other women who have similar issues. I have been part of a support group for moms of kids with disabilities for the past couple of years. We have a “mom’s morning out” group that meets once a month during the school year. The moms I meet with have children with a whole spectrum of different disabilities, but we all have the same common thread of loving our children and wanting the best for their lives. Being part of this support group has not only allowed me to develop new friendships, but it has truly been a benefit to my mental health, reminding me that I’m not alone and that I have someone there to listen to me.

Support does not have to come in the form of a monthly meeting. It can come from a church family, an online discussion group, extended family members who are willing to listen and help, or a doctor who has a genuine interest in your child. Even Facebook seems to have a group to support just about every issue out there in life. Searching out the right group of people and then connecting takes away that feeling of being all alone in the situation.

I have also come to realize that I also need to take care of myself. There are days when I just need to dig myself out of a pit and that’s hard. One thing that seems to help me is to get outdoors. Either a walk or weeding in my flower garden can do worlds of good for my mental state. Just having a quiet time to think is often therapeutic. Sometimes I like to put in my ear buds and listen to music or a podcast to take my mind off things and relieve some stress. I know it’s often impossible to get away by yourself when you have younger children, but sometimes going to a park for a picnic or small hike can do worlds of good. Somehow exercise and being outdoors always benefits my mental state.

The most important part of taking care of myself has been taking care of my spiritual self. For me it involves reading my Bible, praying and thinking about all the promises God has for my future. If anything lifts me out of the pit of depression and weariness, it is my time talking to God daily in prayer. The Book of Psalms speaks to anyone who is weary in life.

Once a year, for the past eight years, my husband and I have gone away for a weekend. That was not an option for us for many years while most of our children were young (the first twenty years of our marriage it was impossible), but recently it has been a great way for us to step away from the responsibilities at home and refresh our minds.

Friends of mine have flung themselves into fundraising for various organizations that research their child’s particular disease or disability. By putting their energy into supporting the organization, they not only work towards a hopeful cure for their child, but they also direct their minds in a positive way, and I’m sure that helps them through their difficult journey.

I would love to hear from other moms who have children with disabilities and would like to have someone to talk to. You are welcome to message me on Facebook or post your email address and we can talk that way. It is very hard when you feel alone when caring for a special child. Knowing you are not alone makes a world of difference and helps us to do the best we can for our children.

Anniversary

By Amy Dienta

This past January my husband and I celebrated our 10th wedding anniversary! 10 years of working together, 10 years of being partners working together for the well-being of our family. I started thinking about all the things we do well together, and made a list.

1. Together we can achieve what ever we set our minds to. Another child, house, a different job or another degree- we have been through it all.

2. We raise our kids in a loving, caring and supportive environment.

3. Support each other in pursuing our dreams.

4. We know what we each do best. My husband is the go-to guy for fixing things, and I am the person who writes letters, fills out paperwork or calls the school.

5. We both try our best to not argue!

6. Put out family first in all that we do.

Then I started thinking of what we don’t do well.

1. Our house is not the cleanest on the block. Mostly my fault I’ll admit!

2. We are both disorganized sometimes.

3. Sometimes we argue over stupid little things, things that after the fact mean nothing.

4. We sometimes have different ways of dealing with the kids or the everyday issues that come up.

But in the end we love each other, and love our life together. So here’s to another 10 years together!! I love you Mamadou!

What Drowning Really Looks Like

By Jessica Del Llano

Last year I read a great blog post about what drowning really looks like. You may be surprised to find it’s probably not what you think (I know I was). This is crucial information for every parent to have. Even if you’ve seen this information before, take a few minutes to (re-)familiarize yourself with the signs of drowning, and keep your family safe this Summer!

The Instinctive Drowning Response – so named by Francesco A. Pia, Ph.D., is what people do to avoid actual or perceived suffocation in the water. And it does not look like most people expect. There is very little splashing, no waving, and no yelling or calls for help of any kind. To get an idea of just how quiet and undramatic from the surface drowning can be, consider this: It is the number two cause of accidental death in children, age 15 and under (just behind vehicle accidents). Of the approximately 750 children who will drown next year, about 375 of them will do so within 25 yards of a parent or other adult. In 10 percent of those drownings, the adult will actually watch them do it, having no idea it is happening (source: CDC). Drowning does not look like drowning.

Some of the other signs of drowning:

  • Head low in the water, mouth at water level
  • Head tilted back with mouth open
  • Eyes glassy and empty, unable to focus
  • Eyes closed
  • Hair over forehead or eyes
  • Not using legs – Vertical
  • Hyperventilating or gasping
  • Trying to swim in a particular direction but not making headway
  • Trying to roll over on the back
  • Appear to be climbing an invisible ladder.

Read the entire blog post here.

Everyday is a Party

By Sue Anganes

I have heard the remark many times while in the check-out line at Market Basket:

“Are you having a party?”

“Everyday is a party,” I would reply smiling (but somewhat sarcastically), looking at the mountain of food that I was purchasing to feed my husband and six kids, knowing I had to haul it all home and put it away.

When I took on this mothering job twenty-seven years ago, I never knew how much work it would be. Would I have traded it for any other job if I had known how exhausting it would be? The answer is a definite “No!”

I love being a mom.

Here’s a picture I “borrowed” off of Facebook. I think it sums up what most of us feel sometimes.

First Birthday, Egg Allergy and Switzerland

By Heddi Nieuwsma

Over the weekend, we celebrated my son’s first birthday. We recently learned that in addition to his milk allergy, he is severely allergic to eggs. For his party, my husband and I prepared two dairy/egg-free cakes as a baking competition to see which one my son liked better. The little guy takes after his mother and preferred my chocolate cake. My mother has been making it since I was young, and I’m sharing the allergy-friendly recipe below because it’s easy, fun for kids to make and tastes delicious.

Crazy Cake

1/3 cup cocoa

3 cups flour

2 cups sugar

2 tsp. baking soda

1 tsp. salt

2 tablespoons vinegar

3/4 cups vegetable oil

2 tsp. vanilla

2 cups water

Sift flour, sugar, salt, baking soda and cocoa into ungreased 9×13-inch cake pan. Make three wells in the dry ingredients and add oil, vinegar and vanilla in each of the wells. Pour water over all and blend well with a fork, but do not beat.  Bake at 350 degrees for 35 to 40 minutes.

For some allergy-friendly frosting recipes, check out The Vegan Chef.

Moving to Switzerland

This will be my last blog post on Merrimack Valley Moms because my family and I will be moving to Switzerland this summer. We are so excited to begin this new adventure, but sad to be leaving our friends and family. I’m grateful to Lowell General Hospital for giving me this opportunity. It has been great connecting with other local moms and sharing my experiences in the Merrimack Valley. If you want to continue following us in Switzerland, particularly as we figure out how to manage my son’s allergies in the land of chocolate and cheese, please check out my new blog.

Thanks to you all, and best wishes to the Merrimack Valley Moms blogger community!

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